Early last week we were told Ryan was on his way to being home by the end of the month; however, there has a been a slight set back. Dr. D, the cardiologist, spotted an issue during Ryan’s most recent ECHO. It seems he has a membrane that was present at birth, which is growing and causing Ryan to have a high respiratory rate and unstable oxygen saturations.
What does this mean? Ryan showed signs of respiratory stress Sunday night so he was immediately put back on high flow oxygen and taken off feeds. Early Monday evening, he was reintubated. This is disappointing, but we hope it is for the short-term.
Typically, the docs would do a surgery to cut away the membrane. However, in Ryan’s case, they want to open him up the least amount of times necessary so they are going to try and do a cath procedure to strip the extra tissue from the membrane. This is only a short-term fix – the tissue is expected to grow back. The docs are hoping it will take a few months to grow back allowing Dr. J to cut the membrane out during the Glenn procedure.
Ryan is scheduled for the cath procedure this Thursday around lunchtime. Please pray Dr. K is able to remove enough tissue to buy Ryan more time before having another surgery. Once they strip this membrane, the docs hope Ryan will be able to totally wean off oxygen and his heart rate will stabilize. We hope the same thing.
As of now, I’m not sure when Ryan will come home. This cath procedure should not hold us up as it is typically an outpatient procedure. The only thing holding us up is his weaning off the meds and oxygen. We would like for the feeding tube to be gone too, but he could come home with that. The latest developments with this membrane have kept Ryan from making progress with the oxygen and taking food by mouth.
Here are the biggest prayer requests for this week:
~ The cath procedure goes as planned
~ Ryan will wean quickly off the ventilator after his cath
~ It will be clear Ryan has no more issues he shouldn’t come home with
~ Ryan will learn to suck and swallow to be able to feed by mouth
(c) 2016 Leighann Marquiss
Comments (6)
Dear Leighann,
I am so sorry to hear of the setbacks you are facing with precious Ryan. I have copied and pasted your post into my documents to print it out and place in my Bible and also by my kitchen sink to pray very specificlly for this week on these things. I will continue praying until the Lord resolves and bring healing to pass in Ryan body. I stand with you and believe for that healing to come and more strength everyday for him as he breathes and grows! Much love to you tonight!
Sarah
Will be praying….
Sorry to hear about the setbacks. We pray for Ryan everynight and will continue to do so. Love ya lots.
I’m sorry, you are all always in our prayers.
We’re sorry to hear about this. You’re in our prayers…
I a so sorry to hear about the setbacks with your little man. I am praying for you guys today. I can imagine how difficult this is for you and I know how badly you wanted to go home. God has a plan and it sounds like he is getting wonderful care.
Just a side note: the feeding difficulties are very frustrating, but he will eventually get the hang of it. It may take a while, but he will get there.