I wish I had the energy to tell you about my entire day, but I’m tired and I must sleep. I will tell you that I was held up for most the morning and didn’t get to the hospital until 2 p.m. – the time I usually leave to get home in time to pick up the girls. We got Ryan bathed and dressed and then had to wait until his nurse discharged her other patient. Ryan worked so hard (PT came while we were waiting) he conked out for a bit.
While we were waiting, several visitors from the CICU and HKU came to say good-bye. The nurses and doctors become very attached to ‘long-termers’, especially ones as smiley and interactive as Ryan.
We were finally ready to pack up… Ryan saying good-bye to his nurse.
We took one last stroll through the HKU and CICU – there was a lot of fanfare, hugging and cooing.
If you remember, Ryan showed some anxiety the first time he came home from the hospital when he was two months old. Today, he acted like we had just taken a short trip to the store. No anxiety to speak of. He sat and played in his chair the entire night while I worked with the nursing agency to get them up to speed on his meds, feeds and medical diagnosis.
That’s all the details you get tonight. Obviously, he’s doing great. We are a little overwhelmed with all that needs to happen, but we’ll get there.
(c) 2016 Leighann Marquiss
Comments (40)
WOW!!! Found your blog in “blogland” and am so glad that Ryan got to come home. You and your family are such an inspiration and have such great faith.
SO AWESOME! I have been reading and waiting for this to happen! I am sure you are absolutely thrilled and exhausted! Praying for you to settle in quickly and for this to be permanent! xoxo Jeffra
Praise the Lord for a wonderful transition from the hospital to coming home! 🙂 Will continue to pray that all of his needs to be met smoothly and enjoy each & every day with him! 🙂 I’m so happy that he’s finally home! 🙂
O Lord, our Lord, how majestic is Thy name in all the earth!
I have one word to say…
HALLELUJAH !!!!!
(:>) (:>) (:>) (:>) (:>)
Couldn’t wait to get up this morning and check your blog to see if you were home with that precious little boy! Enjoy him, Love him, Hold him, Praise God for him! So Happy for you all!
The picture of him hanging out in your home brings a huge smile to my face! Praise God that you finally have your sweet boy at home! I hope you are able to get some much needed rest soon. I look forward to reading more about life at home.
Marmi said it well! My heart overflows with gratefulness to God… my eyes overflow with tears of joy and happiness. Again from Jer. 32:27 “Behold, I am the LORD, the God of all flesh; is anything too difficult for Me?” To our great God alone, be all the praise and honor and glory!! WooHoo!!
Yay!!! It finally happened! So glad to see Ryan at home. I’ll be praying that things continue to go well and that God will give you grace and strength as you deal with all the new things. Love ya!
Tyra
I am so so so excited for you! I’ve been following your blog for awhile ( I know your cousin Julie J. in Panama City, FL – long story, I’ll email you – and she pointed me toward your blog).
I’m praying for your family this week and can’t wait to hear how everything goes while having your whole family under one roof!
Beth
Yay! Ryan looks so happy to be home. Praying for an easy transition for everyone.
Gail
Annapolis, MD
oh, man. he is so cute! i want to book a flight pronto to come see him (and you and the rest of the family, of course!). glad he’s home, love you!
YAY ryan!!!
Welcome home, Ryan! I’m so happy for all of you.
I didn’t want to comment until he was actually home. I am so thrilled for all of you and especially Ryan!!! Woo hoo!!! Yay!!! Happy happy joy joy!! Congratulations To all of you!! I will continue praying that he gets to stay home where he belongs!!!
Love, Hugs & Prayers!
Lizz
Hoping everyone is doing well and adjusting to Ryan being home! He is such a cutie!!
~Wendy
I cant believe how red his hair has gotten. Strawberry blonde or red? I love his smile full of little teeth sneaking in.
Yea he is home!!!
Congratulations!!! How exciting! I’ve enjoyed reading your blog and little Ryan is truly a miracle 🙂 God’s blessings to your sweet family as you’re finally all HOME together!
Love & heart hugs from another heart family of 5,
Katie & Maddie (HRHS)
Congratulations on having your beautiful baby boy home with you!
Congratulations! I bet you can’t wait for your new normal to feel normal. Look at all his teeth! He’s going to look so mature when they come in.
CONGRATULATIONS! I know you must feel so relieved to have your entire family all in the same house!
BIG Hugs – Tiff
Once things get into a rythem, everything will be fine again. Its wonderful to hear he is home and doing good.
GO RYAN!! YEAH!!!!!!!! Sending healthy hugs your way! No germs aloud!!!!!!
Yeah! So thrilled for you that he’s home! Praise God!!!
I am thrilled to hear Ryan is home. Such and answer to prayer!
By the way, Ryan looks so much like Ainsley in the “goodbye to his nurse” picture!
Jumping for joy and rejoicing with you that your little miracle man is home again! Hope you are enjoying all that smooching and cuddling:-)
rejoicing, rejoicing, rejoicing! praying, praying, praying! I am so happy for you and will continue to pray for the next leg of the journey with sweet Ryan!
Such a wonderful day. An answer to our prayers. It is so great that your family is all home. Ryan’s pictures were beautiful. He has such a beautiful smile. We will keep praying for you all.
Love you,
Aunt Karen and Uncle Richard
God is GOOD! I am so happy for you guys. I hope everything will continue to go well.
Thinking of you all….
Evelien
Awesome!!!!!!!!!! Praise God! Beyond happy for you!
Melissa
I’m so happy for all you. I mentioned you and your family in our praises this morning in Church. This is a wonderful praise.
Yeah!!!! We are so happy for you…couldn’t wait to check the blog to see if he was finally home! What a joy..we are praying for the transition.
love, the McGees
Yay! That is so great. He looks wonderful.
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Amen – definitely worth shouting over!!
congrats on getting to take him home. enjoy.
yay! a full house! i’m so happy for you guys, it’s been a blessing to watch your journey and his journey. it always inspires me to persevere in my own struggles. i’m sure you’ve answered this somewhere, but what color is ryan’s hair? it looks almost like a strawberry blonde, i absolutely love it! he’s such a cutie! <3, stacy
I’ve read this entry of your blog 4 times! Ryan’s smile says it all. 🙂 Welcome back home little man!!!
Hopefully life calms down a bit Leighann, I can only imagine how many miles and how much gas you’ve burned. AND how much worry and sleepless nights you’ve spent missing your little man and wondering if he is okay.
*FKA anonymous
YAY HES HOME!! YAY!
Glad to see the updates! Our thoughts and prayers are with you – God is good!
Beverly- Ohio