Ryan in his bouncy seat…
Ryan is 2 months old! Can you believe it? It has a been a trying two months, but they really have gone by quickly. The good news is that Ryan weaned totally off of oxygen today AND moved to the Heart and Kidney Unit (HKU).
They haven’t given us a new timeframe for coming home, but I did talk to the HKU Nurse Practitioner today about his progress. He should be off his meds by week end and they will start him on bolus feeds tomorrow. He should start to have hungry periods by Friday and hopefully I can start working with him to suck and swallow (again).
The biggest thing now is his sucking and swallowing. They won’t keep him long at Children’s once he no longer needs acute medical attention. Meaning, they won’t keep him there if feeding is his only issue. They are taking it one day at a time, but if Ryan doesn’t get the hang of eating by mouth shortly, the will move him to a rehab hospital down the street called The Hospital for Sick Children. They have therapists there who work with babies on a regular basis teaching them to suck and swallow. For various reasons, they do not send heart babies home with feeding tubes.
So, the good news is Ryan is getting better. It seems the membrane really was the issue keeping him from progressing and now that that has been taken care of, he’s off to the races.
(c) 2016 Leighann Marquiss
Comments (17)
Praise GOD!!!!! He is so faithful. We continue to pray for you all and are so grateful to God for Ryan continual improvement.
Love the picture. He looks so healthy and normal in his bouncy seat. Happy 2 month birthday Ryan!!
Will continue to pray. Love ya all.
I love the picture of Ryan in his bouncy seat! Too cute! We’ll be praying he learns to suck and swallow soon so he can go home!
-Brent and Julie
God is so faithful! You go Baby Ryan!
Is the no feeding tube a hospital wide policy there or just your cardiologist? I know of countless heart kiddos who have gone home on feeding tubes. In fact, this is the first time I have ever heard of not sending them home with a feeding tube.
I am praying that Ryan will get the hang of eating very quickly.
love him in his bouncy seat… hugs to you all… you are a great mom and doing great!!!!
Ryan continues to amaze! Praise God! Thanks for posting the pics. They are great! What a handsome fellow you have. We continue to pray for you all.
Great news! And he looks so cute in his seat. Hope ya’ll are able to go home soon. Love and prayers!
He looks so good!!! Praise God!
YAY!
What good news! I will be praying that he starts to work up quite an appetite that wills him to suck and swallow!
wow, i love the bouncy seat picture. it really makes him look his age!
Happy two month birthday, sweetie! Glad to hear he is continuing to do better – our prayers for your family continue!
Happy two-month birthday for Ryan! We’ll continue to pray for him and the rest of your family.
I’m so happy to read this blog post. Things seem to be going very well for Ryan. Give him a hug for me.
I’m excited for the day you can take Ryan home and we’ll be able to see pictures of him there. 🙂
Lynnette
happy 2 month birthday! <3 i read your whole blog from the beginning and it's been so awesome to see where he is now. =)your whole family is always in my prayers.
What exciting news….I am so rejoicing for all of you! Welcome to the HKU – I wasn’t there today to volunteer but that’s the floor I love!! I’ll be there next week..maybe you will be home!!
Happy Birthday, Baby Ryan!!
Grow baby grow! You are sooooooo cute and alert! And aren’t you a big boy in your bouncy seat! Let our prayers lift you little man. You’ve got quite the following of fans. YOU ARE WORTH it little one!