One of the things I miss most is doing things as a whole family. More often than not, I am waving good-bye to Henry and the girls as they embark on an activity we would choose to do as a family but don’t because of Ryan’s maintenance requirements. Saturday it was Henry’s sister’s high school graduation party.
I was sad to see them go. Well, I would’ve been sad, but I was taking a nap and didn’t hear them leave. I woke up two and a half hours later. I guess I was tired. Thankfully, Ryan was sleeping off a hard night so he didn’t miss me.
The quiet was a blessing in disguise. I took the day to think and relax. It gave me time to plan out some summer activities for the girls…. to create the structure needed to keep them out of trouble. My plans include building a foundation for phonics with Ainsley and completing blends and long vowel words with Natalie. (and yeah, I have the books for both already in my arsenal)
I also want to learn scripture with the girls over the 11 weeks of summer. I sat down and researched which verses I want them to learn (revolving around Christ’s redemptive work on the cross, how to treat other people, controlling our anger, and our hope in Christ). I wrote them out on 3×5 cards to make it easier on myself. I chose one for each week.
And I thought of some concrete ways to incorporate simple math into our daily lives through games, baking and scavenger hunts… such grand plans.
I took the chance to have alone time with Ryan. We took a walk, played, worked on object recognition, eating, and tummy time.
But I do yearn for the time when we will all be together doing fun things. And I thought today about how Ryan is much more manageable now than a month ago or five months ago when he came home. Instead of getting meds every two hours and feeds every three, he now gets meds twice a day, and only has three day time feedings (instead of five). It makes going out much easier when you don’t have to pack up meds and food into a cooler. And his oxygen is at 1 instead of 2, making his tanks last longer. So I’m wondering if ‘the time’ just might be now. Wondering if it’s time to start taking him like we would any other infant. Maybe, just maybe….
(c) 2016 Leighann Marquiss
Comments (7)
Slowly but surely. One day at a time, sweet Jesus! 🙂
Leighann I am so glad you got some “quiet rest”. You sure do deserve it!
And I am glad that little Ryan was resting too.
I am glad Ryan is making progress and things are slowing down a bit and he is requiring a little less care.
I am praying that family outings will be workable very soon.
Keep on trusting…sweetie. You’ve come a long way. And God has everything planned out for you.
Love, Linda @ Truthful Tidbits
Love the ‘sing, spell, read, and write’ curriculum! That’s what we’re using too and what my mom taught me with….it provides a great foundation for reading and spelling skills. 🙂
Hoping that your days of being able to go out as a family come soon. I know it has to be hard always doing things seperately.
Love and Prayers,
Tyra
I agree, slowly but surely one day at a time! PTL that you got quiet rest. PTL that Ryan is making much progress. With all your heart your mind and soul if you keep on focusing and trusting the Lord things will fall into place if it’s His will. Praying that the whole family will do fun activities soon! :o) Until then enjoy every moment and thanking Jesus for each day 🙂 <3
OOO I love planning! Looks like great plans for the summer.
Let me know how Sing , Spell… works for you guys.
PS- Glad you were able to get some well needed rest!
Use movies too as teaching tools. It’s awesome.
I find myself frequently feeling sorry for myself for the same reason. I have a 2 y/o speciail needs daughter, and a 2 month old. It’s like having twins I tell ya. I wish we could just pack up and go like we used to, but now is not that time. Thanks for putting things in perspective! God Bless and I pray Ryan continues to do well!