I know I posted last week that Ryan wasn’t due for a cardiology appointment for a few weeks, however we ended up going last Friday. When I scheduled the appointment (in Pittsburgh) the scheduler and I had a bit of a debate when Ryan should be seen. Children’s in DC wanted him seen one or possibly two weeks from discharge. The lady over the phone refused to fit me in any earlier than three weeks. She finally told me she’d email Ryan’s cardiologist in Pittsburgh to see if the appointment should be sooner. Of course she called me back to say he should come down at his one-week discharge date. It was extremely hard not to say, “I told you so.” I’m telling you guys now though – I told her so!
I have pictures of Ryan getting all sorts of test. Not sure I’ve ever shown you his EKG though. He calls them stickers and helps take them all off when we’re done. He’s such a trooper.
Ryan’s satting in the 59-61 range without oxygen so we’ll keep him on the 1/2 liter a little longer. He’s getting tired of dragging around his nasal cannula, but doesn’t complain too much during the day. Night time is a different story. He takes it off and throws it on the floor after I leave the room. I try putting it back on him while he’s sleeping but it just ends up on the floor again. For now, I put it on him during the day and let him win the battles each night.
His other vitals look great. He’s back to his normal self at home. No coughing. Happy. Sleeping and eating well. All good stuff.
After his doctor appointment we headed to a consignment shop east of the city since we were already half way there anyway. While there we stopped in Regency Square (a Pittsburgh neighborhood… there really isn’t a square) at Square Cafe for lunch. The staff was friendly and accommodating. Ryan had a grilled cheese with fries (he made sure he was getting fries!) and I had the pecan-crusted chicken salad. Yum!\
We aren’t due back to the cardiologist until late June.
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(c) 2016 Leighann Marquiss
Comments (5)
he is starting to look like such a big boy!
Way to tell her!!!!
Ryan looks like such a happy boy 🙂 I don’t blame him on the fries….yummy!!!!
Your miracle boy looks great!
I suppose I don’t blame him for not wanting to have the oxygen hooked up at night : (
Ryan looks great! Pretty pink compared to a few months ago!
Can you do a blow-by at night, or does he move around too much?