Ryan’s sick again. He’s fighting a cold. He’s better after the weekend but still. He was well for two weeks this time. He’s puffy and irritable. Life’s been fun. Really.

Both his cardiologists have been hinting about a cath. I’ve been pushing back for several reasons. One – when his Pittsburgh cardiologist suggested one in January, I wanted to wait to see if his sats rebounded after he got over his cold. They did. Two – when his DC cardiologist mentioned it in February, I wanted to see if his edema was a reaction to his ear infection. It was.
This past Thursday Ryan woke up puffy – AGAIN. I think this is to be our winter story. I’ve been giving him 2,000 mg of vitamin C per day… spaced throughout the day. He’s still getting sick.
Friday, after taking him to the pediatrician to rule out an ear infection she asked me to notify cardiology that Ryan was sick again. Just in case. It made my stomach roll. Fear that they’d have us do a cath. Concern that he really needs one. Resignation that he will need regular ones for the foreseeable future. All of these things going through my head for the few minutes it took to get through.
For now he only has a cold. But the cath is coming.

Comments (12)

  • Lloyd Sisters / February 28, 2012 / Reply

    Leighann…hoping and praying it’s just a cold and Ryan’s puffiness disappears quickly and be feels better soon!!

  • Wendy / February 28, 2012 / Reply

    Poor little guy! Hope he gets better quickly. Thinking about you all.

  • Steph / February 28, 2012 / Reply

    Thinking of you and your strong little man!

  • Our7isheaven / February 28, 2012 / Reply

    Praying for Ryan.

  • Anonymous / February 28, 2012 / Reply

    I’m so sorry Ryan is sick again. I can’t imagine how hard that must be. I’m praying for Ryan and I’m praying for you.
    Love,
    Katie

  • Lisa / February 28, 2012 / Reply

    Praying!

  • Julie / February 28, 2012 / Reply

    praying friend!!!! love you

  • Beckysblog / February 29, 2012 / Reply

    Praying for Ryan and you!

  • ann / February 29, 2012 / Reply

    He’s got the heart of a champion. He’s got a family the loves him.
    You have a lot of great doc choices.
    Live today.

  • hiswife518 / February 29, 2012 / Reply

    Give vitamin D as well, it’s actually more important than C! Hope your little guy feels better SOON!

  • hiswife518 / February 29, 2012 / Reply

    Give vitamin D as well, it’s actually more important than C! Hope your little guy feels better SOON!

  • Sue D / February 29, 2012 / Reply

    Hello, did you know your little boy’s hospital photo is being used on Facebook by pages to obtain ‘likes’ or ‘shares’ to boost their numbers? Please see this link of one such page https://www.facebook.com/photo.php?fbid=304266666304134&set=a.131630386901097.24475.131611143569688&type=1&theater

    I am a member of a group of people on Facebook, who have been trying to report photos such as this, some pages have been using photos of sick children saying that facebook will donate money for sharing such photos. Of course they do no such thing, and it is a cruel hoax. One photo being shared is actually of a little girl who died 4 years ago, and you can imagine the distress this has caused her mother. This is a link to our Facebook group. http://www.facebook.com/groups/215864285733/ If you need any further info, please join our group. Thank you for reading,
    Sue Drake

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