That is so awesome! His legs are looking stronger too. I had a question, if it is not prying. What do they plan to do as a long-term permanant solution to his turtle shell vest? will he always have to wear something externally? If you don’t feel comfortable answering, I understand.
(long time reader, first time commenter…I think…) He is SO CUTE!!!!!! I love how you can see the pride and joy in his face! He is an absolute doll 🙂 Congratulations, big boy!!
Hi I am a Neonatal Nurse Practitioner Student and I found you because I was researching Pentalogy of cantrell. I have been caring for an infant with a less severe case. Her mother is hesitant to allow a g-tube. Do you have words to encourage or support going home with NG feedings?
BTW you have a beautiful family. Thank you for sharing.
Foxies12 – please have the mother contact me. I am happy to share with her any experiences we’ve had with Ryan’s diagnosis. My email is leighann_marquiss(at) yahoo (dot) com
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Comments (19)
Keep on Moving on Big guy!!! He sure looks so proud of himself!!
That is so great! He is looking so grown up these days….where did our baby go? Soon he will be walking.
God is so good! Ryan has come so far. (Far enough to undo his cord! ha!)
Good luck to momma…there’s no stopping him now. (:>)
Linda @ Truthful Tidbits
His big huge smile brings me to tears. He is just so HAPPY & BLESSED!!!
O my goodness. You cant help but smile at these pictures!!! Have a great weekend!
That is so awesome! His legs are looking stronger too. I had a question, if it is not prying. What do they plan to do as a long-term permanant solution to his turtle shell vest? will he always have to wear something externally? If you don’t feel comfortable answering, I understand.
Yay!!!for the freedom to move around looks like he is really enjoying to be able to explore. He looks so adorable.
Yay Ryan. love his big smile.
Way to go Ryan!
That is just awesome.
YAY Ryan! Love his big smile! :o)
That is soooo awesome! He’s amazing!
(long time reader, first time commenter…I think…) He is SO CUTE!!!!!! I love how you can see the pride and joy in his face! He is an absolute doll 🙂 Congratulations, big boy!!
Go Ryan! That’s awesome! You can tell he’s quite proud of himself and he certainly should be. I’m sure you’re pretty proud too momma. 🙂
That boy! Oh I could just squish him! It looks like his torticollis has improved… or is it just the angle?
we want video!
He looks awesome! congratulations on your mobile dude! I have a special guy, too. Nice to meet you!
love, Bree
I still love him so much!!! I could eat him up. That smile, those cheeks…. mmmmmmm!!!!
Way to go big boy!!!
A bundle of wonderfulness!
Hi I am a Neonatal Nurse Practitioner Student and I found you because I was researching Pentalogy of cantrell. I have been caring for an infant with a less severe case. Her mother is hesitant to allow a g-tube. Do you have words to encourage or support going home with NG feedings?
BTW you have a beautiful family. Thank you for sharing.
Foxies12 – please have the mother contact me. I am happy to share with her any experiences we’ve had with Ryan’s diagnosis. My email is leighann_marquiss(at) yahoo (dot) com
Thanks!