I wanted to make this a really cool post, take a lot of time and figure out a lot of stats, but my life is happening faster than I can keep up with so this will have to do.
Ryan has been home one year as of Saturday, January 8.
He came home a newborn, but he was 11 months.
Now, he is almost 24 months, and is much like a 12 month old. Right on target.
(sorry it’s blurry, one of the girls took it on one of their camera escapades)
And he does like his food…
We can’t eat anything now without him asking for some…
But that’s okay. We like it when he asks for food because when he came home he didn’t know how to swallow.
As an update:
- Ryan eats 3-4 tbsp of food at a sitting.
- He’s 29 pounds, 4 ounces
- He’s cruising (and has since September) but doesn’t have the balance to walk yet.
- He practices standing without support, and loves making a game out it.
- He’s getting good at crawling up the steps.
- He’s off oxygen from 8 am – 8 pm.
- He tries to do puzzles and loves Mr. Potato Head.
- When he came home last year, he was on 13 meds with 28 doses per day. He’s now on 4 meds (pending he tolerates the wean from his reflux meds) and gets 3 of them once per day and 1 of them twice per day.
- He says several words. The ones I can remember are: mom, dad, natalie, kitty, car, dog, hi, that, did-it, boo, where’s-it?
- He signs: more, please, help, book, food, and drink.
- He loves his dad. His mom. And his sisters.
Next steps: Heart cath in March; Fontan in the next 2 years.
That’s all folks!
(c) 2016 Leighann Marquiss
Comments (11)
YAY! Praise the Lord for all He has done with lil Ryan!!! so happy he’s home and doing well!! Love his last photo that huge beautiful smile of his! so exciting!! :o)
Awesome!
God is so good! This past year has just flown by, hard to belive he has been home a year already.
WOW! He has come a long way in a year. His next word needs to be aunt johanna. Can u work on that for me?
Love his smile!! Thankful with you for all the progress. God is good!!
Simply AMAZING!!
Wow! Has it really been a year already that he has been home? That is amazing…and really a praise item. And also that he is down to just a few meds! And off of oxygen for so many hours a day. God is good!
It is good that he enjoys eating now and he looks so cute doing it!
I love praying for our boy…and I am tickled to hear of each new accomplishment.
Thanks for this post Leighann.
God’s continued blessings!
Linda @ Truthful Tidbits
that last picture is SO cute!!!!!!
That was awesome to see the changes! God is so good and Ryan is such a miracle. Thank you Leighann for sharing him with us and the journey. I am sure I speak for many when I say, my faith has grown because of sweet Ryan and your precious family. I look forward to seeing Ryan grow into a Godly young man. Praise God from whom all blessings flow!
He’s doing so great! That’s awesome how many meds he came off! And I love the last picture! Go Ryan go!!
So wonderful! His smile just makes my heart skip a beat. God is awesome.