As you know, we are working on getting Ryan to suck, swallow, and breathe all at the same time. Not an easy feat for a baby who is used to getting food by just lying in his crib. Who wants to start working for something they didn’t have to work for before?
Additionally, we are dealing with a baby who has never had the chance to work on his sucking and swallowing reflexes. He was intubated literally within minutes of birth prohibiting any type of swallowing – even of mucus. For healthy newborns this is a trait they must work on so you can imagine how much more difficult it is to teach an old baby new tricks.
Ryan took 4 ccs of milk earlier this week and 11 ccs yesterday…all through a bottle nipple. I’ve tried nursing several times and he kindof just played around. He sucked one time almost 2 weeks ago before his cath procedure.
Comments (18)
What wonderful news!
OH MY GOODNESS!!!!!!!!!!!! ARE YOU STILL FREAKING OUT? This is the best news I have heard all week! I am SO excited for you and have chill bumps all over right now! What a gift of pure delight this must be for you today! YIPPEE! I better get working on our little something so it gets ther before he ddes!
Oh that’s wonderful news!!! I KNOW what a big deal that is. I’m so happy for you and Ryan.
It is tiring for heart babies, but I want to encourage you that Anna got NICE AND FAT on just nursing even with heart problems.
Can’t wait to hear more news in the days ahead. Go Ryan Go!!!
Love,
Lynnette
Ryan is AMAZING!!!!! I came to check the blog after I read this opening paragraph of an email from ChristianBook.com:
“A beautiful thing happens the more we learn to trust in God. When we come to him with the struggles we’ve tried to carry on our own, He takes the weight from us, and gives us His gifts of patience, perseverance, strength and peace. Our heavenly Father gives good gifts when we turn to Him in our need.”
It made me think of you.
Love you.
Mags
Ok, I just read the last 2 post at the same sitting. WOW! SOOOO MUCH GOOD NEWS! Ryan is full of tricks up his sleeve. Praise the Lord. I am so happy for you that you were able to nurse your precious miracle. Can’t wait to read that he is home. Love ya all.
Oh my goodness! He knew what to do, didn’t he?! Keep feeding and growing little man! You are an amazing little boy!
FANTASTIC!!!!!!!!!!
I am jumping for joy! Way to go little guy!
is anyone surprised that a marquiss likes to eat? “now THIS is the life!” is what he’s thinking now (smile)
love you all!
leighann-that is SO amazing….babies are just incredible…they can do so much more than we think, huh?? thanks for sharing…even the funny moments! rejoicing with you!!
Way to go Ryan… keep us on our toes. We love it.
That is so exciting!!! No wonder you were freaking out…who wouldn’t have been??!! I’m so happy for you(and Ryan too of course). I hope he keeps getting stronger and stronger. Still praying….
We used to call that flopped back after nursing position “milk drunk” Great news all around.
I love seeing babies with the “milk drunk”!! He truely looks satisfied…more than any tube feed could ever give! Great news! Love you all!
Richelle
Praise God! That’s Huge! Way to go little man! Leighann, I’m so happy for you and know how much this means to you. Thank you, Jesus.
Praise God!!!
I stumbled on your blog through buttons on other blogs. Not stalking I promise… God just led me to your page!
I am so excited for you! My 3 month old son has eating difficulty as well from a different diagnosis but I can just imagine how excited you were. I would’ve been crying!!!
I’m still waiting for my little man to do the same. All in God’s timing! Sooo excited for you!
Andie Johnson
http://www.johnsonfamilyarchive.blogspot.com
Hang in there! God Bless =)
Praise the Lord! That is so wonderful, Leighann. I enjoyed reading the blog so much today. Wonderful news. Keep up the good work, Ryan. Your Uncle and I pray for you everyday. Pray you are home soon. God bless you and your family.
He’s NURSING!!!!!! YAYYYYYY!!!! What a strong little man!
Praise!