The week at mom’s Ryan had a weird episode where he spaced out for about 30 seconds and his body became rigid. Thinking it could’ve been a seizure, I got him into the neurologist last week.
I knew the appointment would be an all day thing once we included the tests he needed. I really dreaded taking all three kids, but it ended up the girls distracted Ryan and felt like big helpers.
Being that I’m pregnant I was unable to stand beside Ryan during his CT scan. I was afraid he would freak out. I was so proud when after a little coaxing and explaining what was going to happen he stayed still through the whole test without me in there. (It helped they had Cars playing on a screen he could see.)
Then came the worst part. A 2 hour wait between test that just about killed us all. The kids were golden all morning and then the waiting killed all that. Natalie fell apart and made the next hour simply unbearable. I was that mother who ended up yelling at my child in public, flicking her in the head for a punishment, and was literally fuming at the ears by the end. She just would not stop crying and complaining for an ENTIRE hour. We were stuck in the hospital with no where to go…. at home I would’ve sent her to her room. In public, there really is no safe place to send her. Oh for the love.
But we made it through. And it came time for Ryan’s EEG. He was very afraid. He’s never had one and didn’t want to lay on the table and get spaghetti hair. The girls came in handy once again.
And he was finally all hooked up. Thankfully after 10 minutes of me trying to get him to stay still and stop crying (the girls abandoned me for the waiting room television), the tech brought in Scooby Do for him to watch on a portable DVD player. He was pretty good for the 30 minutes after that.
The good news is the neurologist doesn’t think Ryan had a seizure from what I described and the test confirm his brain activity is normal. His episode was very odd so I’m hoping it doesn’t happen again! I consulted with his neurosurgeon right away to see if he thought it had to do with his hydrocephalus but he didn’t. The neurologist will send her notes and an email to the cardiologist and see if we should follow up there. Until then, I’m moving on with life as normal. All his docs and specialists have notes on it in case it happens again.
Comments (4)
Scary stuff! Especially the spagetti hair! It was hard for me to get Polly to sit still for those darn things too. She was much younger at the time, but still difficult. So glad that the tests all came back good! One less thing to worry about. 🙂
Leighann…I’m sorry that Ryan had that little episode. I hope it doesn’t happen again, and that everything is alright. Glad that so far it seems to be ok. 🙂
I read your book this weekend and I couldn’t stop until it was all done! You did a good job of telling his story. I was so amazed at all that you handled. I have been following your blog since Ryan was born, and I knew a lot of the stuff you shared in the book…but there was oh so much more that I didn’t know! Ryan has really gone through so much for his young age, bless his sweet heart. And that of course means that YOU have suffered right along with him. and all that he has been through. My heart ached for Ryan, for you, for Henry, and for the girls when I was reading the book. I did cry some tears through it…and I got choked up many times.
I am so thankful that he has been home now for so long, and that he is doing so good. Boy, he has really come a long way! You have grown so much through this experience, and I am glad that you are where you are today. I know he will have to have more surgeries…like the Fontan…and that things will be necessary, but I think your faith will get you through the things in the future, just like it has gotten you through everything so far. God loves you all so much…and He certainly has a plan for your lives! Jeremiah 29:11.
I saw my daughter Lynnette this weekend, so I gave her the book to read. Having gone through similar situations with her daughter Anna, I thought she would want to read it too.
Love to you all!
Momma Linda
So glad the tests came back ok and Ryan was very brave to be able to go through them. When out in public and no room to send a kid too – I would find a wall where I was and let them sit indian style facing it. How quickly an attitude adjustment takes over – love that all us parents have this problem at sometime or another. Have a great day
Poor Ryan! My son had a seizure when he was 4 and had to have a EEG. No fun! Glad everything came back okay. My son’s tests all showed normal also. He’ll be 8 next month and hasn’t had another episode since then. So glad Ryan’s results were good!