Wow, what an amazing day! Baby boy is acclimating to life on the outside and has a team of doctors and the Almighty God working to help him survive. There was a surprise this morning when the doctors brought baby boy into the world. Instead of just having his heart exposed, part of his stomach is also exposed. This is more common than ectopic cordis alone. He also was able to take a first breath or two, but then unable to maintain his own breathing. The team resuscitated him and immediately hooked him up to a breathing tube. He continues to use the breathing tube, but is also taking about 4 breaths a minute by himself. This means he is working to do some breathing, although unable to sustain life on his own.
The good news is that when the doctors looked at his defect, they noticed the heart and stomach are covered by a membrane of sorts, much like skin, sealing baby boy’s organs off to air. They are satisfied for now that he does not need to have any synthetic covering as this membrane is doing the job of protecting from infection. We praise God that immediate surgery was not needed…this is one less thing for baby boy to have to overcome.
The pediatric team started tests immediately including x-rays, sonograms, and an MRI making for a full day. Tomorrow the team will work to interpret the information gathered today and also plan to take baby boy’s case before a large group of specialists on Monday. We do not know when we will have a concrete plan to move forward, but overall day one went well.
We are blessed to have several world renowned doctors helping us. Today’s team consisted of over 15 doctors and as many or more nurses. Baby boy is the talk of the town and is receiving excellent care.
Baby boy weighed in at 8 pounds 6 ounces and measures 20 inches long; not bad for coming at 38 weeks.
Comments (11)
Oh i am so glad you updated! Sounds like a good day overall! We will keep praying!
We’re so happy to hear Baby Boy did not need immediate surgery! Thank you for keeping us updated. We’re praying for you and thinking about you.
-Brent and Julie
praise God he didn’t need immediate surgery. Praying the doctors have clarity today as they look over all the tests and information that is coming back. Praise God for the thin membrane protecting his heart and tummy. Praying you recovery quickly Leighann!!! HUGS from afar
Praise God! He answers even our smallest concerns in His unimaginable ways. His plans and His timing is perfect. He knows just what Baby Boy can handle and when.
Hugs for you both,
Jennifer for all the Gustavi
wow! so many praises!!! our God is amazing. why am i surprised?!? praying you got some rest and recover quickly!
So glad to hear that there was no immediate surgery needed. Hannah was sick all night so while I was up you were in my prayers. Hope you are able to get some rest today, and we will keep praying. LOL The Luhns
Oh what an answered prayer!!! God is amazing!!
I hope you’re recovering well! God bless you!
Suny
We’re so happy baby boy didn’t need immediate surgery! thank you for the updates. we are continually praying for you all.
love, marshall and melissa
God is Good ALL THE TIME! We will keep praying for baby boy. We love you all.
Answered prayers! I will keep praying and have posted about your family on my blog asking for my readers to pray for you and Baby Boy. We serve a MIGHTY GOD!
Question, MOM… HOW ARE YOU?
Praise God! Congratulations you guys, he is absolutely beautiful! We continue to pray for you all.