Dancing in the rain
In the weeks since Ryan’s surgery it has become more real to me than ever…
All is Well {post Fontan, we are home}
I’m sitting in the waiting room of the orthodontist while Ainsley gets spacers put on…
Goodbye, Mr. Tube (Ryan’s Fontan Day 32)
They pulled Ryan’s chest tube this morning after two days of draining in the high…
Still in a holding pattern (day 30 post Fontan)
Ryan continues to be completely stable except for his chest tube drainage. His ascites is…
Ryan’s Fontan post-op day 27
We are in day 27 of Ryan’s post-Fontan hospital stay and we’re tired. Tired of…
Ryan’s Fontan – 3 weeks post-op
Day 23- Ryan has had steady waves of nausea throughout last night and today. Ascites…
Ryan Update (Fontan day 20)
This is our 20th day in house and it doesn’t look like we’re breaking out…
Ryan to Air Traffic Controller {Fontan update, day 17}
I feel like a plane that is circling an airport waiting to land…. we are…
A winner, an update, and a list (because, of course)…
First, the winner from the Johnson Made Design giveaway is Bethany V. I sent you…
Ryan’s Fontan- post-op day 12 – of moving and visits
Yesterday was an exciting day as we were able to move out of the ICU…
