Ryan’s Status

May 17, 2012/Ryan

I’ve tried to get to my computer most the morning to update you guys on what’s going on with Ryan but it’s been a constant flow of people from PT, OT, Case Management, Child Life, Nurses, Nurse Practioners, Surgical Fellows and the food cart.   Ryan successfully weaned down to 1/2 a liter of oxygen before having weird saturation readings. By weird I mean the monitor was telling us he was desatting to 34, 45, or 55 but Ryan was happily playing with blocks, throwing them at me and knocking down towers with no change to his color or energy level. Typically we’d chalk this up to a bad read on the probe but all the indicators were saying the pulse ox was reading correctly. Because Ryan is acting well we are ignoring the probe for now (which is inaccurate below 65 anyway).

All this being said, we are still planning to go home tomorrow pending the surgeon’s approval. The only debate is whether we leave on oxygen or not. The case manager ordered it just in case as well as all our home meds.

Talking to Ainsley this morning. 

Talking to Pop last night. 

Ryan and I are very ready to be home after three weeks away. Hopefully my next update will be saying we’re loading up the car.

Comments (9)

  • Jennifer / May 17, 2012 / Reply

    He is so cute. Glad to see him sitting up! Hope your next post is about going home too!

    Jennifer.

  • Anonymous / May 17, 2012 / Reply

    These pictures are adorable!!!!!
    -Katie

  • merlin / May 17, 2012 / Reply

    I don’t know why but the first picture of Ryan makes me think he is an executive, issuing instructions, or maybe a stock broker saying to buy or sell….he just looks much older than his years. Praying for red shoes for both of you to take you home, there is no place like home.

  • Dot / May 17, 2012 / Reply

    aww he’s so cute. Hope he gets out 😉

  • Marmi / May 17, 2012 / Reply

    Thrilled to hear you will be headed back to Pittsburgh soon! God is amazing.

  • Lisa / May 17, 2012 / Reply

    Ryan looks great! Praying all your ducks are in a row so you all can go home tomorrow!

  • Anonymous / May 18, 2012 / Reply

    Great news! I hope Ryan continues to regain his strength, and I pray that you have safe travels back to Pittsburgh.

    -Debbie, south central PA

  • Jennifer / May 18, 2012 / Reply

    Yeah! Praying for those red shoes too! Such a fun thought. I’m sure Henry and the girls are ready to have you home too.

    God Speed!

  • Our7isheaven / May 18, 2012 / Reply

    Prayig y’all will be heading home soon. I love the first picture of Ryan on here…. it made me smile 🙂
    The Seavey Crew

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