I’ve been…
I’ve been here and there and yonder in the last few weeks….. the underlying depression…
Dancing in the rain
In the weeks since Ryan’s surgery it has become more real to me than ever…
Summer turns to fall.
It’s feeling more and more like fall every day here in the ‘Burgh. I absolutely…
A much needed update.
It’s been so long since I posted, I almost forgot how to start a new…
To Josh Duggar
When I read the headline this morning that Josh Duggar’s name appeared among the many…
All is Well {post Fontan, we are home}
I’m sitting in the waiting room of the orthodontist while Ainsley gets spacers put on…
Goodbye, Mr. Tube (Ryan’s Fontan Day 32)
They pulled Ryan’s chest tube this morning after two days of draining in the high…
Still in a holding pattern (day 30 post Fontan)
Ryan continues to be completely stable except for his chest tube drainage. His ascites is…
Ryan’s Fontan post-op day 27
We are in day 27 of Ryan’s post-Fontan hospital stay and we’re tired. Tired of…
Ryan’s Fontan – 3 weeks post-op
Day 23- Ryan has had steady waves of nausea throughout last night and today. Ascites…
